Find support and encouragement by connecting with other members of the medical ketogenic diet community
Connecting with Others in the Medical Keto Community
You don’t have to be alone. This is a journey that we are all taking with you and supporting you along the way.
Having the right support & resources can help you successfully start and stay on a medical ketogenic diet. Connecting with others who understand the medical ketogenic diet journey can make all the difference. To some, this can feel like an overwhelming task. Below are a few patient organizations to help you stay connected and get involved.
You can also ask your keto healthcare team if there are any local families that may be able to help support you as you begin your journey. It is important to find support with the medical ketogenic diet lifestyle and surround yourself with those who can help you along the way.
Helpful Organizations
Epilepsy Foundation
Leading the fight to improve the lives of those living with epilepsy. The Foundation focuses on providing community services, public education, research initiatives, and funding new treatments and therapies.
Charlie Foundation
When 11-month-old Charlie Abrahams developed intractable epilepsy, his parents turned to the ketogenic diet. Within a month, he became seizure-free. The Charlie Foundation was founded in 1994 to provide those with epilepsy with new diet therapies to manage their symptoms.
Matthews Friends
Since 2004, Matthew’s Friends, a UK-registered charity with chapters in the USA, Canada and abroad, serves those living with drug-resistant epilepsy. Matthew’s Friends supports research, grants, training, and information on the medical ketogenic diet.
Glut1 Deficiency Foundation
A non-profit patient advocacy organization dedicated to raising awareness and providing education to improve the lives of people living with Glut1 deficiency and their communities.
Dravet Syndrome Foundation
In 2009, a group of concerned parents created the Dravet Syndrome Foundation to expedite research to find a cure and offer better treatment for their children. The Dravet Syndrome Foundation provides support to families touched by this disease.
Keto Hope Foundation
A non-profit organization founded in 2014 dedicated to families with children on the ketogenic diet for epilepsy.
FoxG1 Foundation
Offers information and resources to families with children living with FOXG1 syndrome. Formed back in 2012, the FOXG1 Foundation is pioneering innovative research to help find a cure while raising awareness and providing support and inspiration to families.
Connecting with Other Keto Families
Connecting with other families who are also managing the medical ketogenic diet for drug-resistant epilepsy can be reassuring and act as an additional support on this journey. Discover stories, tips, and inspiration in a judgement-free zone.
Ella’s Journey with Dravet Syndrome & the Ketogenic Diet
“Part of why keto has worked for Ella is that we make her a part of the process by empowering her as much as possible.”
